A Parent’s Guide: Coping With Your Child’s Spina Bifida
Spina bifida is a congenital condition that affects the development of the spine and spinal cord during early pregnancy. It can have a significant impact on a child's life, requiring careful management and often surgical intervention. With the right interventions and a supportive environment, children with spina bifida can overcome challenges and lead fulfilling lives. Visit POBAR today to learn about your child’s orthopedic treatment options.
As parents of children with spina bifida, you embark on a unique journey filled with challenges, triumphs, and the boundless potential of your remarkable child. We understand that this path may be uncharted territory, but rest assured, you are not alone.
Having a child with spina bifida may introduce you to a world of medical appointments, therapies, and adaptive equipment. It may require you to become an expert in navigating the healthcare system, making important decisions, and seeking out the best possible care for your child.
In this blog post, we will explore various aspects of spina bifida, including its diagnosis, treatment options, and how parents can prepare their child for surgery. By gaining a better understanding of this condition, parents can provide the best possible care and support for their child's well-being.
What is Spina Bifida?
Spina bifida is a congenital condition that affects development of spine & spinal cord in children. It occurs when the neural tube, which forms early in pregnancy and eventually develops into the baby's brain and spinal cord, fails to close properly.
This incomplete closure results in a gap or opening in the spinal column, leaving the spinal cord and nerves exposed. The effects and symptoms of spina bifida can vary depending on the type and location of the spinal defect. There are different types and severities of spina bifida. The three main types are:
Myelomeningocele: This is the most severe form of spina bifida. It involves a sac-like protrusion on the baby's back, which contains the spinal cord and meninges (protective coverings of the spinal cord). This visible opening is typically located in the lower back. Myelomeningocele can cause significant nerve damage and result in paralysis, sensory impairments, and other complications.
Meningocele: This type of spina bifida is less severe than myelomeningocele. It also involves a sac-like protrusion on the back, but the sac only contains the meninges and not the spinal cord itself. Meningoceles are usually smaller and may cause fewer neurological complications.
Spina bifida occulta: This is the mildest and most common form of spina bifida. In spina bifida occulta, the spinal cord and meninges remain inside the spine and do not protrude. The opening in the spine is usually small and covered by a layer of skin. This type of spina bifida often goes undiagnosed as it may not cause visible signs or symptoms.
What Causes Spina Bifida?
The exact cause of spina bifida is not yet fully understood, but it is believed to result from a combination of genetic and environmental factors. Research suggests that insufficient levels of folic acid during early pregnancy can increase the risk of spina bifida.
Other factors, such as certain medications, maternal obesity, and pre-existing maternal diabetes, may also contribute to the development of the condition.
How Do You Know If Your Child Has Spina Bifida?
The diagnosis of spina bifida can occur at different stages, both before and after the birth of a child. Here are some key points regarding the timing of diagnosing spina bifida:
Prenatal diagnosis: Spina bifida can often be detected during routine prenatal screening tests. Around the 16th to 18th week of pregnancy, an ultrasound examination may reveal signs of spina bifida, such as an open spinal defect or abnormalities in the shape of the skull or brain. In some cases, further diagnostic tests, such as amniocentesis or chorionic villus sampling, may be recommended to confirm the diagnosis.
Birth examination: In cases where spina bifida is not diagnosed prenatally, it may be evident shortly after the child's birth. Visible signs can include an opening or sac-like protrusion on the baby's back, particularly in the lower back area. This type of spina bifida is known as myelomeningocele and is the most severe form.
Developmental milestones: In milder cases of spina bifida, such as spina bifida occulta, the condition may not be apparent at birth. Diagnosis may occur later in life, often when a child experiences symptoms related to the spinal defect or as part of a medical evaluation for other reasons.
If you suspect that your child may have spina bifida or if you have concerns about their development, it is crucial to consult with a healthcare professional. Early diagnosis allows for timely intervention, appropriate medical care, and the implementation of strategies to support your child's overall well-being.
Remember, every child is unique, and the diagnosis and management of spina bifida should be tailored to their specific needs. Healthcare professionals at POBAR with expertise in spina bifida can provide an accurate diagnosis, guide you through the process, and offer appropriate support for both you and your child.
What Happens To A Child With Spina Bifida? Symptoms and Effects.
The effects of spina bifida can vary depending on the type and severity of the condition. Common complications associated with spina bifida include:
Paralysis or weakness in the lower limbs
Loss of sensation or altered sensation in the legs and feet
Problems with bladder and bowel control
Hydrocephalus (a buildup of fluid in the brain), which may require the placement of a shunt to drain the excess fluid
Orthopedic issues, such as scoliosis (curvature of the spine) or clubfoot
Learning disabilities or cognitive challenges
Latex allergy, which is more prevalent in individuals with spina bifida
The severity and impact of spina bifida can vary from child to child. Early intervention, comprehensive medical care, and ongoing support can significantly improve a child's quality of life and help them manage the challenges associated with the condition. With appropriate treatments, therapies, and support, children with spina bifida can lead fulfilling and meaningful lives.
Can Spina Bifida Be Fixed?
While spina bifida cannot be "fixed" in the traditional sense, there are treatment options available to manage the condition and minimize its impact. Surgery is often recommended to repair the spinal defect and prevent further damage to the spinal cord. However, the surgical approach and timing may vary depending on the individual case.
Surgical treatment for spina bifida typically involves a procedure called closure surgery. During this procedure, the surgeon carefully closes the opening in the baby's back and covers the exposed spinal cord with surrounding tissues. In some cases, additional surgeries may be necessary to address specific complications or related conditions.
What Is The Best Treatment For Spina Bifida?
The best treatment for spina bifida depends on the individual's specific needs and the severity of the condition. In addition to surgical intervention, a multidisciplinary approach is often recommended. This may include:
surgery
ongoing medical care,
physical therapy,
occupational therapy,
assistive devices, and
educational support tailored to the child's needs.
Regular follow-ups with healthcare professionals are essential to monitor the child's progress and make any necessary adjustments to the treatment plan.
Can A Child Grow Out Of Spina Bifida?
Spina bifida is a permanent condition that does not resolve on its own. Once a child is diagnosed with spina bifida, it will be a lifelong condition that requires ongoing management and care. However, the severity and impact of the condition can vary significantly from person to person.
Can A Child With Spina Bifida Live A Normal Life?
While spina bifida presents unique challenges, many children with this condition can lead fulfilling and meaningful lives. Early intervention, comprehensive medical care, and ongoing support are crucial in helping children with spina bifida achieve their full potential. With the right treatments, children with spina bifida can participate in various activities and pursue their goals.
For A Detailed Treatment Plan For Spina Bifida, Speak to Our Leading Pediatric Orthopedic Doctors in Brandon and Tampa, Florida.
We’re a friendly pediatric team based in Brandon and Tampa, Florida, and we’re pros at dealing with spina bifida. If your child has spina bifida and needs to see a medical professional, get in touch with us.
At POBAR, we take your child’s health seriously and offer an incredibly high standard of care and knowledge. Ready to speak to one of our caring doctors? Book an appointment today!